Sep. 15th, 2010

addyit: (Default)
this needs to be shared, in respect to something my mother just asked me.

in this...
...you need to learn when to say, "When*!". in this, patience is, and isn't, a virtue.

saying "when", when dealing with chronic pain, is something chronic pain sufferers are bad at... VERY bad at. to think of it clearly, we need to exit our bodies and evaluate the situation, barring work, family, school, all other needs. when you live with chronic pain, you have an odd view of it.
when the 1-10 scale is used in emergency rooms and hospitals, i can't help but laugh... especially when, since they don't know you, they don't know what your "norm" is. when a crohn's patient is admitted, saying they are having level 10 pain and look completely normal, most staff don't understand what this means. (chances are, they're NOT being wimps. far from it). people with chronic troubles are too often labeled as having a "crohn's" personality, or an "asthmatic" personality. (is there a "CF personality"? would it surprise you if there was?). point is, the tolerance for pain is MUCH higher than the norm.... what ever that is.

there is an echoing resonance of pain. in fact, there's a level of pain we don't even feel. some pain, we don't know it's there until it's gone.
this is true for arthritis, for crohn's, and i think it's true for asthmatic (in the sense of breathing). you don't know it until you experience it, for whatever reason.

i had an idea.
chronic pain sufferers should be allowed to use a "color" scale. remember that "terror" scale that Bush instigated? i think it would work very well here. blue= normal level of pain, red=wildfires eating your nerves GIVEDRUGSNOW before i EAT YOUR BRAINS. it's down to five colors, and i feel it would work better.

i think i even heard of a change in emergency room training, to use something like this. (not exact, of course. this is my own idea, only mentioned to my GI specialist and one or two CF nurses). but then, with morphic resonance, who knows?


*when is too much pain, too much?
*when you will attend to it?
*when there is a problem?
*when did it happen? (what caused it, if you can guess? and if you can't.... can you and your doctors attend to it?)


....goddamn it. i need to get on that school and find out what's going on before they penalize me.

Profile

addyit: (Default)
My Crohnie/CF Appendix.

April 2015

S M T W T F S
   123 4
567891011
12131415161718
19202122232425
2627282930  

Style Credit

Page generated Dec. 16th, 2025 01:21 am
Powered by Dreamwidth Studios

Expand Cut Tags

No cut tags