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[personal profile] addyit
 i can't sleep, for tomorrow, i start Kalydeco. 

it's felt like my mother, mostly, but i, too, have fought all this way very much on our own. the clinic has helped a little when we've supplied the majority of the information, but it feels as though we found everything first. 
we were actively seeking it, first, before all. 
i get the feeling there's going to be a lot of peering in, of doctors, residents wanting to see me take the first dose... when it's not something i'm going to be that willing to share with them. 
it's personal. 
i'm more than willing to be a guinea pig for many medications, as i am for this one, but that may go a little too far. 
why do i expect this?
because it's in my notes, it's known to many of the nurses and doctors here. 
why can i see people, who don't even know how many pills i should take or how i should take it/what i should take it with, crowd in and expect me to play the patient being bettered by medical science?

it makes me want to just take it early, NOW, and get it over with, only i have to eat with it, and i have no room in my stomach to eat more. all i can do is wait for this stomach to get a little less full. 

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My Crohnie/CF Appendix.

April 2015

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