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Oct. 8th, 2010
spas and sans.
Oct. 8th, 2010 03:31 pmi joined a CF facebook group a couple of weeks ago. it astonished me, and brought home to me, how many CFers deal with the worst bugs SO early in life.. and how frantic it makes their parents.
one mom talked about the year and a half they lived in Hawaii. it is, apparently, the BEST climate for CFers. the air is clean, salty, and the climate is perfect. her daughter did remarkably well while they were living there.
unfortunately, they had to move back, since on the islands, there's no CF respirologists or pediatricians. well, there's ONE CF pediatrician, but this doctor was located on an army base, and they don't share their physicians with the general populace.
don't you think we're missing out on a HUGE possibility here? i mean, if Hawaii's the best climate, and there's a limited population... surely Hawaii could draw in CF doctors of all kinds, as well as patients? i mean.... think of the possibilities! CFers could live there, or could go there when they're sick! it could be like a spa. you know, as close as 40 years ago, when people had TB they used to go to sanitoriums? "The San", is what they called them. they were used for all kinds of illnesses, from breakouts to breakdowns.
well.. why not CF?
i know of a girl who has CF, and although she's done all she can to be in the best of health, when she became pregnant, she couldn't take her TOBI because she was afraid of the possibility of deafness to her child. well, her health worsened, she lost weight, and she became quite ill. her mum was at her wit's end.
so, she was sent on vacation. her dad paid for her trip, and she went with her hubby. i can't remember where, but the climate was hot, and it was a break. after a couple weeks, she improved immeasureabley, gained weight, and when she came home, was able to eventually have her baby without incident.
strict measures would have to be in place to ensure there would be no cross-contamination and to keep things clean (legionairres is rife at hot places with air conditioners)... but IMAGINE the possibilities! people go to Hawaii for the most ridiculous reasons.... but THIS could be a real one.
one mom talked about the year and a half they lived in Hawaii. it is, apparently, the BEST climate for CFers. the air is clean, salty, and the climate is perfect. her daughter did remarkably well while they were living there.
unfortunately, they had to move back, since on the islands, there's no CF respirologists or pediatricians. well, there's ONE CF pediatrician, but this doctor was located on an army base, and they don't share their physicians with the general populace.
don't you think we're missing out on a HUGE possibility here? i mean, if Hawaii's the best climate, and there's a limited population... surely Hawaii could draw in CF doctors of all kinds, as well as patients? i mean.... think of the possibilities! CFers could live there, or could go there when they're sick! it could be like a spa. you know, as close as 40 years ago, when people had TB they used to go to sanitoriums? "The San", is what they called them. they were used for all kinds of illnesses, from breakouts to breakdowns.
well.. why not CF?
i know of a girl who has CF, and although she's done all she can to be in the best of health, when she became pregnant, she couldn't take her TOBI because she was afraid of the possibility of deafness to her child. well, her health worsened, she lost weight, and she became quite ill. her mum was at her wit's end.
so, she was sent on vacation. her dad paid for her trip, and she went with her hubby. i can't remember where, but the climate was hot, and it was a break. after a couple weeks, she improved immeasureabley, gained weight, and when she came home, was able to eventually have her baby without incident.
strict measures would have to be in place to ensure there would be no cross-contamination and to keep things clean (legionairres is rife at hot places with air conditioners)... but IMAGINE the possibilities! people go to Hawaii for the most ridiculous reasons.... but THIS could be a real one.