the cavity is pregnant?
Dec. 10th, 2012 12:17 pm there's fluid in the large cavity again.
after a spot of blood from the lungs this weekend, which greatly alarmed me, i was worried enough to call in... and was told they KNEW, and hadn't called me, about the fluid build-up on the last x-ray i had. (the only reason i can think of me not being informed was i got the x-ray on the way out of my appointment, and they gave me a three day TB/MAC test to do). i hadn't done the three day sputum TB test because i had issues with my fistula, and was put on a course of cipro- this usually means less productive sputum, so i decided to wait a little. unbeknownst to me, i WAS growing aspergillus, and another fungus, and they never told me.
i also grew MAC on my last TB culture- but that was one out of the three, and at the very end of the 8 weeks they keep it.
why did i wait.... WHY....
so. this means a CT scan this week, possible IV antibiotics, more MAC meds, more antifungals, possibly a bronch and... well, you can imagine the rest. all at the busiest time of the year.
i've decided i'm going to refuse hospitalization if they demand it. i can't see why they WOULD, though- i'm not bleeding, i'm not sick, i'm not feverish.....
i don't know how i'm going to tell my mom.
after a spot of blood from the lungs this weekend, which greatly alarmed me, i was worried enough to call in... and was told they KNEW, and hadn't called me, about the fluid build-up on the last x-ray i had. (the only reason i can think of me not being informed was i got the x-ray on the way out of my appointment, and they gave me a three day TB/MAC test to do). i hadn't done the three day sputum TB test because i had issues with my fistula, and was put on a course of cipro- this usually means less productive sputum, so i decided to wait a little. unbeknownst to me, i WAS growing aspergillus, and another fungus, and they never told me.
i also grew MAC on my last TB culture- but that was one out of the three, and at the very end of the 8 weeks they keep it.
why did i wait.... WHY....
so. this means a CT scan this week, possible IV antibiotics, more MAC meds, more antifungals, possibly a bronch and... well, you can imagine the rest. all at the busiest time of the year.
i've decided i'm going to refuse hospitalization if they demand it. i can't see why they WOULD, though- i'm not bleeding, i'm not sick, i'm not feverish.....
i don't know how i'm going to tell my mom.